The Personalisation Programme aims to improve the transition of patients who require further community support and are finishing active treatment. We are working to ensure that people feel appropriately informed, guided and supported based on their own needs. The digital offer will be available for patients and professionals with a multitude of support options. This Personalisation model will be integrated across acute and the community.
People of Lincolnshire felt at the end of their cancer treatment that they were ‘falling off a cliff edge’. Within the Personalisation Programme, a holistic model will be implemented to support the patients and people of Lincolnshire. The model will standardise the offer of holistic support across tumour sites and streamline care between primary and secondary sectors.
Lincolnshire Living With & Beyond Cancer Personalisation Film
A Holistic Needs Assessment (HNA) ensures that people’s physical, practical, emotional, spiritual and social needs are met in a timely and appropriate way, and that resources are targeted to those who need them most. An HNA is a simple questionnaire that is completed by a person affected by cancer, with their CNS, Cancer Care Coordinator or Macmillan Support Worker. It allows them to highlight the most important issues to them at that time, and this can inform the development of a care and support plan. The questionnaire can be completed on paper or electronically
.
The PAM® is a tool that measures people’s knowledge, skills and confidence (referred to as ‘patient activation’) in managing their own wellbeing. It is expected that by understanding a patient’s activation level, care can be planned appropriately with the individual, leading to improved wellbeing and fewer episodes of unplanned and emergency care.
The PAM® is a questionnaire comprising 13 questions. The responses match the respondents to one of four levels of ‘activation’, each of which reveals insight into a range of health-related characteristics, including behaviours and outcomes.
The PAM® is used in conjunction with care and support planning and a range of interventions to support self care.
A Treatment Summary is a letter/ template produced by the specialist doctor or nurse within the hospital setting out-lining the end of a course of cancer treatment or management. The aim of this letter/template is to provide high quality communication between your hospital team and your GP. The letter/template should contain details of any treatment you have received, but also other useful information about alert symptoms that may require referral back to your specialist team, as well as describing possible consequences of treatment, any ongoing management plan as well as any required GP actions to help support you back home. Copies of the completed treatment summary will be sent to you and your GP.
A Cancer Care Review (CCR) is a conversation that takes place between you and your GP or practice nurse. The conversation is aimed at addressing your holistic needs, as well as the clinical following a diagnosis of Cancer. It offers the opportunity for you to talk about your cancer treatment and any side effects of it, along with an opportunity for a medication review and advice to be given about prescription entitlement. The CCR offers a place and time to address your needs that are most important to you and those of your carer if you have one. You can be signposted or referred to other services, for example physical activity opportunities that can help to support your health and wellbeing within your local community as well as Macmillan.
Self Management
Following your treatment you may want to get back to activities you enjoyed before your diagnosis or may even want to try something new. You can find a range of support that Lincolnshire can offer to get you back to feeling yourself again.